On 6/23/10, at the age of 26, I was diagnosed with invasive ductal carcinoma...Stage 3 Breast Cancer. On 7/25/14, at the age of 30, I met Lolli, a 1 inch tumor in the left side of my brain; I have metastatic disease. On 2/3/17 Lolli became active again and as a result of treatment I have limited mobility in my right leg. I want to share my experiences so that loved ones, friends and others can follow along while my journey continues. Enjoy.
Friday, August 24, 2012
In the raw
I figured this was the best way to show everyone how I am doing.... Straight out of the shower with drains around my neck. This is going to be a long, long road. Not to mention the mind-fuck that happens when I look in the mirror and see this. The pain is its own battle.
Wednesday, August 15, 2012
D is for Dori, not my bra size
saying goodbye to my second set of boobs, that is two too many. |
Well tomorrow is the day folks—I will be checking in at UW hospital
at 12:15pm to have these implants removed. I am thrilled with my new plastic
surgeon and I know that I am in good hands (literally). I have been miserable
since the beginning of June when I had my right implant that migrated up to my
collar bone removed, the radiation scar tissue scraped and cut out (cringing
while thinking of that malpractice) and a new implant placed there. From there
I have been on more antibiotics than most people should be in a lifetime and
have open sores on my body, my hair is falling out, I am in constant pain and
am achy like I have the flu. Not to mention not being my bubbly sunshine and
rainbows self. (HA)
me loving my new boobs! |
I had a necklace created for me with tomorrows surgery date
and “done and done” (a favorite phrase of mine) stamped into it. The necklace
was designed and created in front of my eyes by Bonnie of Birth Designs (http://www.birthdesigns.com). It is
amazing and perfect and I can’t wait to see what else she will create.
I am fortunate enough to have extreme love and support from
friends and family. I have been held up when I thought I was done and without
all of you I wouldn’t be who I am today.
One of these people is my wonderful cancer doula Patti Ramos (http://www.pattiramos.com/photoshoots.html),
who happens to be also be an amazing photographer. Prior to my bilateral
mastectomy we took lots of photos of my old boobs and my dearly missed
nipples. I am looking to my surgery
tomorrow as a new beginning. I am taking out these infected implants and giving
my body a chance to heal. So following tradition we took some photos to say
goodbye to these breasts. It was a great experience to take photos and have
Scott participate.
Scott and I in our police lineup |
yep, I ran around naked in the studio and Patti covered me with lace |
proud and infected |
Wednesday, August 8, 2012
sour hope
Well I wish I was greeting you with better news, but you
know me, I throw a fit and then apologize later. So here it goes………..my
implants have to come out, and by come out I mean removed, stolen, sliced,
torn, dissected, leaving me with two (what I have lovingly decided to call) “skin
holes” for at least 6 weeks. I have images of being able to “tie them over my
shoulder” or the old lady Magda’s boobs on There’s Something About Mary (minus
the nipples and tan of course) I have no nipples and I already had cancer once,
I will pass on the tan—thank you very much.
So here is the story. I have felt shitty since my surgery on
the 1st of June. You are aware that I had an intense infection,
drains, and more antibiotics than I can count. Nothing seemed to make a
dramatic difference, and then rashes, sores, more sores and achiness followed
(and has yet to leave). Yesterday Scott and I went to my new plastic surgeon at
UW and within minutes he said that my implants had to come out—I am a textbook
case of an infection and that there is bacteria that is clinging on for dear
life to my implant. And to put it
gingerly my previous plastic surgeon fucked me big time. After the implant
migrated to my collar bone on the radiated side there should have NEVER been a
surgery to scrape out the tissue. Standard of care would have been to remove
said implant and then being a surgery to create a new breast with my own tissue………that
didn’t happen (and was also never mentioned) so here I am. I feel cheated. I
feel like I should have been given the opportunity to have a fair shot this
time around. I blame myself for not doing as much research as I had previously,
but come on, really?! It is your job to be a plastic surgeon in 2012, not 1980
so get your shit together.
I heart my new plastic surgeon and he was very polite about
telling me how wrong my previous surgeon was. I now just have to wait for
insurance to approve the surgery and I will be in the OR as soon as possible to
have the implants removed. I will then continuously be dosed with antibiotics
and won’t even discuss another surgery to work with my Magda boobs. That will
be an image that will take a bit of time getting used to, but if I can finally
not be in as much pain I would let you cut off my foot and I would work with
it.
Once my body has settled down and the infection, sores,
achiness, fevers/chills, anxiety and pain are at a reasonable level we will
shake things up some more by doing a very intense surgery that will use skin
and fat from my stomach to create new boobs. And then after that another
surgery to adjust the fat to make things more symmetrical. I will go into more
details later on, because right now my body is literally too sore to type. My
eyes are red and raw from crying and I am so drained I think I could sleep
until Monday. But I only have these boobs for a little while longer so I plan
to push them together in a bra, throw some glitter on them, and my milkshake
WILL bring boys to the yard. But first,
a nap.
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